TOURETTE SYNDROMEASSOCIATIONOFFICAL SITE TOURETTE SYNDROME ASSOCIATION INC

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Media/Press Inquiries: Contact TSA: 718-224-2999, ext.236; email: tracy.flynn@tsa-usa.org
 

  • TSA'S 4th Congressional Reception in the US Capitol. Click here to read about it. (04/25/08).

  • GINA (Genetic Information Non-Discrimination Act) PASSES U. S. SENATE. Click here to read TSA Press Release. (04/24/08)

  • TSA National Conference - Read about it and View photos - April 2008 TSA National Conference story and photos. Click here to view. (04/24/08).

  • ACTION ALERT ! ! !- CONTACT YOUR SENATOR NOW TO URGE SUPPORT FOR GINA - Click here. (04/22/08).

  • TSA URGES SENATE PASSAGE OF GINA (Genetic Information Non Discrimination Act) IN LETTER TO SENATOR
    KENNEDY
    . Click here to read story, view letter. (04/18/08)

  • A NEW LOOK AND A NEW NAME FOR TSA'S NATIONAL NEWSLETTER - "Inside TSA" debuts. Click here to read this and
    previous issues of the TSA newsletter (read cover for free; join TSA to read full newsletters). (04/14/08).

  • TSA YOUTH AMBASSADOR HONORED BY HIS CONGRESSMAN - Read more. (04/14/08).

  • TSA NATIONAL CONFERENCE PRESENTATIONS ON THIS SITE - Presenters have been kind enough to allow us to
    post their slide shows of presentations made at TSA's April 3-6 National Conference; topics covered include updates
    in Medicine and Research (including Behavior Therapy), Occupational Therapy ("Toolbox for Students"), and Chapter
    Leadership Training. Click here. (04/14/08).

  • "That darn tic" - spring 2008 issue of TSA's Award-winning children's newsletter is published and now available on line.
    Click here to read this and previous issues. (04/10/08).

  • TSA NATIONAL CONFERENCE THIS WEEK - April 3-6. Register in Person at the Hilton Alexandria Mark Center. Click here
    for more information. (03/30/08).

  • NATIONAL SURVEY ON ADULTS WITH TS AND CHRONIC TIC DISORDRS - TSA asks for an hour of your time to help us
    serve you better. Please click here (03/27/08).

  • Tourette Syndrome Association Celebrates the House Passage of LONG-AWAITED Mental Health Parity Legislation.
    Click here to read press release. (03/06/08).

  • ACTION ALERT - Call for a YES Vote on House Mental Parity Act - click here. (03/04/08).

  • TSA WEST COAST CHAMPION OF CHILDRENS AWARDS DINNER in Beverly Hills on February 27th to honor Ashley
    and Jeffrey McDermott and James Marsden. Click here for details. (01/18/08).

  • basal ganglia, tourette syndrome and you - TSA's new chairman, Kenneth D. Moelis asks TSA's friends and
    family to support Tourette Syndrome research, citing cuts in government funding. Included are a letter by the Co-Chairs
    of TSA's Scientific Advisory Board which highlights presentations of TSA-funded research at an international Basal
    Ganglia conference and a Summary of prior year grant awards. Click here. (01/16/08).

  • "That darn tic" - WINTER 2007/8 issue of TSA's Award-winning children's newsletter is published and now available on line.
    Click here to read this and previous issues. (01/03/08).

  • OCCUPATIONAL THERAPY STRATEGIES FOR TOURETTE SYNDROME - New webstream with slide show; filmed at
    TSA's 4/07 Leadership Conference; Marge Henning, COTA presents - click here to view (12/24/07).

  • 2008 NATIONAL CONFERENCE EARLY BIRD DISCOUNT for registration extended to January 19, 2008. Click here for Conference Overview; click here for online registration form. (12/20/07).

  • HAVE YOUR VOICE HEARD! TELL US YOUR STORIES if you have experienced difficulty in getting Social Security
    Administration benefits, such as Social Security payments and Medicaid/Medicare health insurance coverage. Click
    here for details. (12/11/07).

  • TSA testifies at U. S. Social Security Administration (SSA) Compassionate Allowance Outreach Hearingon Dec.5th. Click
    here to read full story.(12/06/07)

  • TSA'S 2008 NATIONAL CONFERENCE REMINDER - Pre-Conference Activities April 2-3, General Sessions April 4-6. Early
    Bird Discount for registration on or before 01/01/08. Click here for Conference Overview; click here for online
    registration form. (11/21/07).

  • TSA RESPONDS TO "SOUTH PARK" EPISODE - Click here. (10/04/07).

  • NEW EDITION OF TSA'S YOUNG ADULT NEWSLETTER "IT'S NOT JUST FOR KIDS ANYMORE" - Online newsletter written
    by and for Young Adults. Click here to read current and previous issues. (10/04/07).

  • "That darn tic" - fall 2007 issue of TSA's Award-winning children's newsletter is published and now available on line.
    Click here to read this and previous issues. (10/02/07).

  • TSA VOICES CONCERN OVER OCTOBER 3RD "SOUTH PARK" EPISODE - Click here. (10/02/07).

  • 11 YEAR OLD WITH TOURETTE SYNDROME GETS TO TOSS OUT THE FIRST PITCH AT SHEA STADIUM - Marques Seme
    a young Mets fan whose favorite players are Jose Reyes and Carlos Beltran, got to toss out the first ball for the Mets September
    25 game against the Nationals. Health Insurer GHI made a $1,000 donation to TSA in honor of Marques' fifth grade teacher, John
    Dalmolin of PS 14 in Corona, Queens. Both Marques and his teacher were honored by the NY Daily News as a Class Act in
    June. Click here to read TSA's Fall 2007 Newsletter 'Victories' item featuring the story. (09/27/07).

  • 4th YEAR GRANT CONTINUES TSA/CDC PARTNERSHIP TO EDUCATE MEDICAL AND ALLIED PROFESSIONALS AND EDUCATION/SCHOOL BASED TEACHERS/CLINICIANS. Click here for details. (09/10/07).

  • ACTION ALERTS - TWO IMPORTANT ISSUES - MENTAL HEALTH PARITY(click here)--Senate Bill moving closer to passage - Your Sentator needs to hear from you NOW!! and GENETIC NON DISCRIMINATION(click here)--Senate Bill Out of Committee--Full Senate Needs to Vote. Let your voice be heard on both of these issues of key importance to the TSA community.(08/15/07).

  • TWO NEW VIDEO RESOURCES FOR MEDICAL PROFESSIONALS/CLINICIANS ON THIS SITE - Panel discussions
    by members of TSA's Medical Advisory Board. In two sessions of approximately 1-1/2 hours each, Panel members discuss
    "HOT TOPICS" - Controversies and Challenges in the Evaluation, Treatment and Management of Tourette Syndrome. Access
    to these webstreams requires registration by Medical and Allied Professionals. Completion of an online Medical/Professional
    Survey after viewing is requested. Click here to register. (08/10/07).

  • ACTION ALERT - MENTAL HEALTH PARITY - Urge your U. S. Senator to get Mental Health Parity bill to the floor and
    get it passed as soon as possible. We have a real chance to get this Mental Health Parity legislation passed if we all
    act NOW; this issue is critical to all families affected by TS. Click here to take action. (08/09/07).

  • "PASSING THE TORCH" - letter from TSA's Chairman, Monte Redman, and President, Judit Ungar, highlights TSA's
    Youth Ambassador program, other outreach and media successes, cites need for expansion. Click here to read. (08/09/07).

  • TSA ISSUES AN UPDATED STATEMENT ON DBS (Deep Brain Stimulation) AND TOURETTE SYNDROME. Click here
    to read (08/02/07).

  • "That darn tic" - sUMMER 2007 issue of TSA's Award-winning children's newsletter is published and now available on line.
    Click here to read this and previous issues. (07/16/07).

  • TAKE ACTION - TS Government Relations Awareness Week is May 28th-June 1st - Raise Awareness of TS with
    your elected officials. Click here. (05/27/07).

  • TOURETTE SYNDROME ASSOCIATION CELEBRATES ITS 35TH ANNIVERSARY AS IT KICKS OFF NATIONAL
    TS AWARENESS MONTH.  
    Click here for story. (05/11/07).

  • TSA WEBSTREAM, DR. JOHN WALKUP'S "DIAGNOSING & TREATING TOURETTE SYNDROME " wins AAMC's
    MedEdPORTAL Approval
    . MedEdPORTAL is designed to assist professors and deans of medical education to find
    teaching resources. The approval entitles TSA to display the AAMC Approval logo. Click here for details (04/27/07).

  • LONG ISLAND, NY EDUCATORS CONFERENCE - ONLINE REGISTRATION CLOSED - Due to an early and gratifying
    response from Educators for this 5/18/07 conference, online registration is now closed. (04/16/07).

  • "That darn tic" - spring 2007 issue of TSA's Award-winning children's newsletter is published and now available on line.
    Click here to read this and previous issues. (04/09/07).

  • TSA launches new ad campaign featuring actor and comedian Richard Lewis. The four public service announcement (PSA)
    ads shed light on the misconceptions about TS and highlight the importance of public understanding about the disorder. Click here
    for full story and link to view streaming media.(04/06/07).

  • long island, ny educators conFERENCE 05/18/07 announced - Supported by the offices of NYS Senators Charles J. Fuschillo, Jr. and Senator Michal A. L Balboni - open to all Long Island Educators and Clinicians - FREE! Click here for flyer and
    link to online registration. (03/23/07).

  • TSA NEEDS YOU TO TAKE ACTION - Urge your U.S. Representative to support the TS Public Health, Education and Research Program to continue TSA's partnership with CDC to educate medical, education, and allied professionals, many in underserved areas.. We've had wonderful results with this outreach program for the past 3 years--but, we need to reach more educators and medical practitioners. Please click here and look for Action Alert. Thank you. (03/16/07).

  • HSBC Sponsors Tourette Syndrome Conference for Brooklyn-Based Educators - February 28th Conference Training
    draws enthusiastic response. Click here to read about it. (03/10/07)

  • 10TH ANNUAL CHAMPION OF CHILDREN AWARDS DINNER - Star studded event on February 15th - click here. (03/10/07).

  • TSA's 3rd ANNUAL CONGRESSIONAL RECEPTION - Prominent Congressional leaders were in attendance for TSA's annual event in Washington. Click here for story.(03/06/07).

  • MAB/SAB MEETINGS - Click here for report on February 2007 Tourette Syndrome Association MAB (Medical Advisory Board) and SAB (Scientific Advisory Board) meetings in Atlanta.(03/02/07).

  • dR. WALKUP NEWLY DIAGNOSED VIDEO ON THIS SITE - Extremely positive feedback from viewers - "not to be missed", "excellent", "valuable"-Viewers have noted the clear discussion of co-occuring conditions, and practical Parenting Tips - click here for news item and link to video(02/28/07).

  • "GETTING OLDER WITH TS" - A new article by Mitzi Waltz, in TSA's Living with TS: Adult Issues section, discusses challenges and suggests ways to "take charge". Click here to view. (02/10/07).

  • SELF ESTEEM - A NEW WEB VIDEO FOR ADULTS WITH TS - Paul Devore, successful California businessman, and former Chairman of TSA, addresses the issue of Self Esteem for persons with Tourette Syndrome. He discusses his life experience and lays down the principals for success and for building a good foundation for Self Esteem. The video runs for 24 minutes; a transcript in pdf format is downloadable. Click here to view. (02/08/07).

  • NATIONAL CONFERENCE 2008 PRELIMINARY SCHEDULE - TSA's next national Conference will be April 4-6 2008 in Alexandria, Virginia (Pre-Conference activities begin April 2). Click here to view Conference Overview. (02/07/07).

  • "TS IS MORE THAN TICS" (Other Important Issues to be Considered) - Education Advocacy article by Kathy Giordano, TSA's Education Advocacy Specialist posted to this site- click here to read (02/08/07).

  • "teens talk with parents " - new tsa publication - Real teens tell parents and adults what it's really like for them to live with Rourette Syndrome. A clear unvarnished insight into the way that teens with TS think and feel. This booklet will help "start the converations between teens and parents everywhere. Both groups will learn a lot from each other. Available in our online store for order, or for immedicate download (look for publication A104, A104DD). (02/06/07).

  • "That darn tic" - winter 2006/7 issue of TSA's Award-winning children's newsletter is published and now available on line Click here to read this and previous issues. (01/23/07).

  • West Coast TSA Champion of Children Awards Dinner to honor UBS' Navid Mahmoodzadegan and actor Kevin Connolly. Click here for story. (01/10/07).

  • TSA plans Chapter Leadership Training and Trip to the hill - click here for full story. (01/10/07).

  • TSA WEBSITE to undergo re-design in the next few months - look for a new menu structure which will ease site navigation; a site search has already been implemented (bottom of main page only). (01/05/07).

  • brooklyn educators conFERENCE 02/28/07 announced - (re-schedule of cancelled 11/14/06 conference). Supported by a generous grant from HSBC;- open to all Brooklyn Educators and Clinicians - FREE! ONLINE REGISTRATION IS NOW CLOSED - CALL US FOR FUTHER INFORMATION AT 718-224-2999. (updated 01/25/07)

  • "GRANT REQUESTS GROW, GOVERNMENT FUNDS SHRINK" - tsa Asks its supporters to fund research, filling the gap caused by drastic cuts in government funding. Click here to read letter by Co-Chairs of TSA's Scientific Advisory Board and a Summary of prior year grant awards.(12/12/06).

  • tourette syndrome association requests the inclusion of Mental health parity within medicaid. Click here to read more about TSA's November 16, testimony before the Medicaid Commission. (12/05/06).

  • NEWLY DIAGNOSED webstream VIDEO PREMIERES ON TSA WEBSITE - Filmed at an all-day Newly Diagnosed Seminar at TSA's 2006 National Conference - click here for story (11/11/06).

  • TSA POSTS WEBSTREAM professional education program, "USING Behavior Therapy TO MANAGE TIC DISORDERS IN CHILDREN" by Douglas W. Woods,Ph.D., Associate Professor of Psychology, University of Wisconsin-Milwaukee Milwaukee, Wisconsin, filmed 07/07/2006 at the NYU Child Study Center joins TSA online education resources for Medical and Allied Professionals. Click here to register and view(10/25/06).

  • TSA Medical advisory board member Cheston Berlin, m.d. Receives 5th Annual Sumner J. Yaffe Award Click here to read more about the respected pediatrician's honor. (10/25/06).

  • "That darn tic" - Fall 2006 issue of TSA's Award-winning children's newsletter is published and now available on line Click hereto read this and previous issues. (10/25/06).

  • TSA SETS NEW LOW PRICE ON EDUCATORS CURRICULUM - to make this Resource available to more educators, TSA has reduced the price of the TSA Educators' Curriculum 2 CD Set to $20 (non-members) and $10 (members). Click here to go to our online store. (10/10/06).

  • The HBO-TSA documentary, "I Have Tourette's but Tourette's Doesn't Have Me" wins a clarion Award. Click here to read more about the award given by the Association for Women in Communications. (10/04/06).

  • MTV award-winning SERIES "TRUE LIFE" TO FEATURE YOUNG ADULTS WITH TS "I Have Tourette Syndrome" episode to air on Tuesday, October 10. Click here for more information. (09/29/06).

  • 3rd YEAR GRANT CONTINUES TSA/CDC PARTNERSHIP TO EDUCATE MEDICAL AND ALLIED PROFESSIONALS AND EDUCATION/SCHOOL BASED TEACHERS/CLINICIANS. Click here for details. (09/27/06).

  • TSA YOUTH AMBASSADOR RESOURCES ON THIS SITE.  TSA's Youth Ambassador program's video, downloadable IPOD video and MP3 audio, presentation outline, resource materials, slide show, class handout and visual aids are now available. Click here to view (09/26/06).

  • Unprecedented Cross Institute Collaboration on Behalf of Patients with Tourette Syndrome. Click here to read more about the special meeting held with scientists, experts and NIH agency staff to develop strategies and find improved treatments for children and adults with TS. (09/20/06).

  • brooklyn educators conference 11/14/06 is announced. Supported by a generous grant from HSBC- open to all Brooklyn Educators and Clinicians - FREE! Click here for Announcement (Adobe Acrobat™ format) and Online Registration (09/02/06).
  • The HBO-TSA documentary, "I Have Tourette's but Tourette's Doesn't Have Me" wins a media access Award.  Click here to read more about another award for the documentary. (08/30/06).

  • The HBO-TSA documentary, "I Have Tourette's but Tourette's Doesn't Have Me" wins a voice Award. Click here to read more about the award. (08/25/06).

  • TSA POSTS CNE (CONTINUING NURSING EDUCATION) PROGRAM ON THIS SITE. Larry Scahill, MSN, PhD, program, filmed 05/06/2006 at the University of Texas Health Science Center at San Antonio School of Nursing joins CME presentations, enhances professional education opportunities on this site. Click here to register and view (08/24/06).

  • emmy for outstanding children's program goes to "i have tourette's but tourette's doesn't have me".Click here for story. (08/20/06).

  • MAJOR VICTORY FOR CHILDREN WITH TOURETTE SYNDROME - Individuals with Disabilities Education Act to Classify Tourette Syndrome as Other Health Impaired. Click here to read news release.(08/03/06).

  • Call for research proposals is announced, beginning TSA's 2006-07 grant award cycle. Click here to read about it. (08/03/06).

  • "TARGETING THE BRAIN TO FIND THE CURE" - TSA urges participation in Brain Bank program, cites the need to pursue promising studies. Click here to read about it. (08/01/06).

  • 4TH ADDITION TO THIS SITE'S CME OFFERINGS:  DR. SAMUEL H. ZINNER, M.D., TOURETTE SYNDROME: Tackling a noisy tic disorder without a whisper about medication. TSA presents, for Continuing Medical Education credits, the webstream of Dr. Zinners's 6/01/06 presentation at the Seattle, Washington Children's Hospital and Regional Medical Center. Click here to register and view. (07/26/06).

  • NEW CME PROGRAMS ON THIS SITE - INCLUDING A SPANISH LANGUAGE PRESENTATION - Two presentations for CME credit (one in English and one in Spanish) by Dr. Jorge L. Juncos, Emory University School of Medicine add to the Medical and Allied Professional Resources on this site. Click here to register and view. (07/20/06).

  • "I Have Tourette's but Tourette's Doesn't Have Me" receives TWO Emmy nominations - One for Outstanding Children's Program and one for Outstanding Cinematography For Nonfiction Programming - Single-Camera Productions. Click here to read more about our honor by the Academy of Television Arts & Sciences. (07/06/06).

  • The HBO-TSA documentary, "I Have Tourette's but Tourette's Doesn't Have Me" has won a Parents’ Choice Award™.  Click here to read more about the award. (06/30/06).

  • "Greetings from grammy" - a letter from Elaine Fantle Shimberg about tsa's grandparents' club. Click here. (06/15/06).

  • TSA MAB CHAIRMAN JOHN WALKUP, MD, AND TSA SAB CO-CHAIRS, JONATHAN W. MINK MD, PhD AND PETER J. HOLLENBECK, PhD, EDIT NEW SCIENTIFIC AND CLINICAL TEXTBOOK ON TOURETTE SYNDROME. Book is based on the proceedings of TSA's 4th International TS Symposium, Cleveland, 2004. Volume 99 in the prestigious series, Advances in Neurology. Publisher offers TSA members 25% discount. Click here to read flyer. (05/17/06).

  • research and medical updates - medical and scientific presentations on tourette syndrome, from the 2006 National CONFERENCE. Presenters have generously made their slide shows available on this website. Click here to view. (04/28/06).

  • Tsa's children's newsletter, "that darn tic," wins 2006 communicator award. Click here to read more about the award process. (04/13/06).

  • FOURTH ANNUAL TSA CONGRESSIONAL BRIEFING A SUCCESS. Tourette Syndrome Youth Ambassadors call on Congress for action and continued support for TS. Click here to read more about this annual event in Washington D.C. (03/22/06).

  • TSA COMMENTARY ON "MEDICAL INCREDIBLE" AND "MIRACLE WORKERS" PROGRAMS. Click here for the Association's reaction to the two national television programs about patients who have undergone deep brain stimulation surgery. (03/16/06).

     
  • TSA eXPANDS ITS MARATHON PROGRAM - CALLS ON RUNNERS, WALKERS and onlookers to join "Team TSA" and help us get "One Lap Closer to a Cure". See how to participate (02/17/06).

  • greatest progress in science funded by tsa research - Click here for Research Appeal, details on Research Grant Awards (01/25/06).

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