![]() ![]() ![]() |
|
|
Founded in 1972 in Bayside New York, TSA is the only national voluntary non-profit membership organization in this field. Our mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome. We offer resources and referrals to help people and their families cope with the problems that occur with TS. We raise public awareness and counter media stereotypes about TS. Our membership includes individuals, families, relatives, and medical and allied professionals working in the field. Link: Awareness/view TSA print ads. |
|
TSA funds research that will ultimately find the cause of and cure for TS and, at the same time, lead to improved medications and treatments. The goal for our research program is to support investigators from all areas of science who can contribute to the understanding of the genetics, pathogenesis, pathophysiology and the treatment of TS. Many of our publications and videos are directed at furthering the understanding and treatment of TS by the medical community. TSA's Medical Advisory Board has developed Practice Parameters for physicians in treating Tourette Syndrome. In partnership with the CDC, TSA is conducting a series of Medical seminars around the U.S., and has launched CME/CNE programs on this website. Links: Medical & Treatment Research Medical/Professional Education |
|
TSA develops and disseminates videos, publications, including a CD Educators' Curriculum for families, individuals, and medical and allied professionals. Many of our publications are available for immediate download. Link: Online Store. |
|
Today, TSA has grown into a major national health-related organization with 31 U. S. Chapters, 125 support groups, and International Contacts around the world. Links: U.S. and International contacts. |
|
TSA provides essential TS information to educators and families to optimize teaching and learning, and tries to end stigma and promote acceptance regarding TS in school settings. TSA's Education Advocacy program give families and advocates the tools they need when pursuing the best program options and services for children. Links: Education Education Advocacy |
|
Our Quarterly Newsletter, our Children's Newsletter "That Darn Tic", and our on-line Young Adult Newsletter contain the latest updates of medical, scientific information and news of interest to all in the TS community. Links: QuarterlyNewsletter Young Adult Newsletter Children's Newsletter |
|
Bi-ennial National Conference for our members and their families provides seminars, information and interaction with Medical and Allied professionals, Chapter and National TSA leadership; Scientific Symposia bringing together acknowledged experts in the field to share their expertise; presentations to Educators in many communities across the U.S. to aid in their understanding and strategies to benefit students with TS; presentations to Medical professionals to correctly diagnose and properly treat the patient with TS. Link: Join TSA |
|
The government relations activities of TSA are designed to educate lawmakers and the public about the impact of legislation, regulatory actions, and public policy on the health and well being of people with Tourette Syndrome. A crucial part of the effort is the network of TSA chapter members who receive updates from the Government Relations Office and communicate directly with their elected officials. TSA monitors issues and voices views on special education, health insurance, funding of health research, and prevention of genetic discrimination. TSA's annual Congressional Luncheon has "Young Ambassadors" raising awareness in Washington D.C. Link: Government Relations. |
|
National TSA has 2 full-time Information and Referral Coordinators with professional backgrounds in social work, psychology, education or related disciplines who answer email and telephone inquiries. We get requests for referrals to physicians or therapists (TSA maintains lists by state for Physicians and Allied Professionals as well as legal resources and various camps and schools). There are questions about Education-related issues (e.g. from teachers for pointers in the classroom, or from parents about teachers' handling of symptoms in the classroom). Parents may be seeking options to better educate school personnel. Other requests for assistance are those seeking information about symptoms of TS and co-occurring disorders, treatment options, Social Security and Disability, ADA, and TS resources. Telephone 718-224-2999 or email us. Link: Email TSA |
|
In addition to seminars and conferences, TSA conducts many activities for families through its chapters, and many events to raise awareness of TS by the general public, as well as to raise funds to further our mission. Golf, Dinner Dances & "Team TSA" Athletic events (marathons, bicycle races and much more) offer opportunities to get involved and have fun for a worthy cause. Links: Participate/Donate TeamTSA |
|
Program development, education and medical programs, government outreach, adherence to TSA's mission, maximizing efforts, minimizing expenses, event management, awareness, media, publications, chapter relations, research grants, scientific and medical conferences, are ongoing efforts of TSA's full-time professional staff. TSA is proud of the extraordinary quality, leadership and dedication of the volunteers on its Board of Directors, Medical Advisory Board(MAB), and Scientific Advisory Board (SAB). Link: Organization and Finances. |
|
©2007 Tourette Syndrome Association, Inc. 42-40 Bell Boulevard / Bayside NY 11361 / 718-224-2999