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TOURETTE SYNDROME
EDUCATION
TSA offers this material to help students, parents, families, educators, clinicians,
and others understand Tourette Syndrome in the classroom and school, to
promote optimal teaching and learning, end stigma and promote acceptance of students with TS.

schoolboy
EDUCATION
schoolgirl
ADVOCACY
Educators
FOR EDUCATORS
EDUCATION QUESTION OF THE MONTH

Q.  My son has an IEP with a Crisis Plan which states when his anger starts escalating he was to be allowed to leave the room and go to his "safe place". Unfortunately his IEP was not shown to ALL of the school personnel. A cafeteria aide tried to drag him to the discipline office by his wrist because she said his anger was escalating. This only made the situation worse. My son was trying to tell her that he was supposed to go to his "safe place". She wouldn't listen to him and continued saying "you're going to the discipline office!" His anger got to the point where my son was screaming that he was allowed to go to his "safe place". He began punching the cinderblock walls. It didn't help that his peers witnessed the whole thing. Is there anything I can do so that every staff person is aware of my son's Crisis Plan? When used, it has been very successful.


A. Your son's story is a perfect example why staff who are likely to come in contact with a student should be aware of specific sections of the IEP that may pertain to them. Plans such as his are important for safety reasons and/or for teaching and reinforcing strategies that may be lifelong methods of managing symptoms. Some schools are reluctant to share students' IEPs for 'confidential reasons'.

However, the federal law, IDEA, speaks specifically to this issue:
Regulations: Part 300 / D / 300.323 (d): Accessibility of child's IEP to teachers and others. Each public agency must ensure that--
      (1) The child's IEP is accessible to each regular education teacher, special education teacher, related services provider, and any other service provider who is responsible for its implementation.

In your son's case, the cafeteria staff were responsible for the implementation of the Crisis Intervention Plan which is part of his Individualized Education Program (IEP) while he was in the cafeteria.

From your description, it sounds like the Crisis Plan is part of the IEP. If it isn't, you will want to ensure that it is or that it is at least mentioned somewhere in the IEP. This is important because if the school every attempts to suspend him for behaviors, a major factor will be whether the IEP was being implemented. If it wasn't, your son would have legal protections regarding suspensions.


It is very impressive that your son is able to self-advocate; this needs to be encouraged. He may want to meet with someone at his school with whom he has a trusted relationship to discuss a proactive plan. It may be helpful if your son has a copy of this specific provision of his IEP in a location that he can easily access and provide to someone during school sessions.

Ask the TSA Education Advisory Board a question about Education
- all questions will be answered.

      EDUCATION RIGHTS


  • Section 504 - provision of the Rehabilitation Act of 1973 (Federal Law) which prohibits recipients of federal funds from discrimination against persons with disabilities

  • Individuals with Disabilities Education Act (IDEA) - Federal Law - stated purpose (in Section 1400 (d)(1)) is  “…to ensure that all children with disabilities have available to them a free appropriate public education that emphasizes special education and related services designed to meet their unique needs and prepare them for further education, employment and independent living” and “to ensure that the rights of children with disabilities and parents of such children are protected….”

    IDEA specifically includes Tourette Syndrome under the definition of Other Health Impairment (OHI)§300.8(c)(9)); the Department of Education explains why Tourette Syndrome is included under OHI:

    "Discussion: ... we do believe that Tourette syndrome is commonly misunderstood to be a behavioral or emotional condition, rather than a neurological condition. Therefore, including Tourette syndrome in the definition of other health impairment may help correct the misperception of Tourette syndrome as a behavioral or conduct disorder and prevent the misdiagnosis of their needs.
    Changes: We have added Tourette syndrome as an example of an acute or chronic health problem in §300.8(c)(9)(i)."

    §300.8(c) "Definition of disability terms. The terms used in this definition of a child with a disability are defined as follows:
    ...(9) Other health impairment means having limited strength, vitality or alertness, including a heightened alertness to environmental stimuli, that results in limited alertness with respect to the educational environment, that:
        (i) is due to chronic or acute health problems such as asthma, attention deficit disorder or attention deficit hyperactivity disorder, diabetes, epilepsy, a heart condition, hemophilia, lead poisoning, leukemia, nephritis, rheumatic fever, and sickle cell anemia, and Tourette Syndrome; and
        (ii) adversely affects a child's educational performance"


    IDEA regulates Independent Education Programs (IEPs)
    .

  • Understanding Assessments & Evaluations - audio and slides

  • IEE (Independent Educational Evaluations) - audio and slides
     

      DISCIPLINE




     ADVOCACY

 

     ACCOMMODATIONS/THERAPIES

 

     FOR EDUCATORS
  • Red Flags - article

  • Understanding Behavioral Symptoms of Tourette Syndrome- article

  • Educator's Guide for Developing IEP and 504 Plans for Students with Tourette Syndrome - article

  • Classroom Strategies, Accommodations and Modifications for Students with
    Tourette Syndrome
    - publication #E115b available in our online store for a nominal charge

  • Vocal Tics in the Classroom - an Educator's Guide- Webinar - slides, audio, downloads

  • Handwriting Issues - article

  • A Guide for Paraprofessionals - article

  • Tourette Syndrome InService - developed so that anyone can make a presentation about TS
    and related issues - slides, videos, downloads, and a video about how to present -
    view online or ORDER FREE DVD

  • Tourette Syndrome in the Classroom, School and Community - Seminar for educators - filmed at an all-day live presentation by members of the TSA Education Committee - addresses a wide range of essential topics.  View online and/or order free DVD.

  • Stand UpOnline Video "Stand Up for Tourette Syndrome"
    Short video (3 min., 39 sec.) in which school kids STAND UP for TOURETTE SYNDROME by helping Luke, a young boy with TS explain his TS to a group of kids who have been acting really mean to him - video is downloadable as is a Teachers' Guide - click here.



  • DVD with Teacher's Resources:
    HBO Documentary, I Have Tourette's But Tourette's Doesn't Have Me.
    The DVD features content shown on the HBO broadcast plus a variety of resources for educators, families, and children interested in learning more about Tourette Syndrome, and supplementary information from experts John Walkup, M.D., Susan Conners, M.Ed., and Evan Trost, M.D.  DVD available through our online store (#DVD-13M, DVD-13NM, DVD-13V).
     

    Free Teacher's Guide - Click here to View or Download


  • Book with Teacher's Resources:

    In this novel, Carrie, a seventh-grade girl has just been diagnosed with TS.  Targeted to early teens, Quit It explores Carrie's struggles to cope with TS while trying to fit in with her peers. Available in our online store (C100M, C100NM).

    Free School Reading Program and Sample Lesson Plan Using Quit It. Click here.




  • School-Based Educator/Clinician Programs
    TSA offers programs to special education directors, IEP team chairpersons, regular and special education teachers, school psychologists and social workers, school nurses, paraprofessionals, speech therapists, occupational therapists in professional association, conference, and university settings.  Presentations are given on Tourette Syndrome and associated disorders; attendees receive course materials and may receive CEU Approved Credit if available (click here for program details and contact information).


  • in our online store - A Workbook for Conducting a Functional Behavioral Assessment and Writing a Positive Behavior Intervention Plan for a Student with Tourette Syndrome - Publication #E126 - Practical guide and valuable resource to address complex behavioral issues. Includes Overview of Functional Behavioral Assessments, FBA Worksheets, Positive Behavior Interventions.

 

     SELECTED ADDITIONAL RESOURCES

 



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